“Kind of hard, sometimes when I'm low I feel like I'm floating in the clouds and kind of shaky.”
For the Merkley family it's a double dose. Will's little brother, Jake also has diabetes.
“Every day can be ups and downs. My boys are very active, they like to play and there are times they go low and they go low at the same time,” says Chris Merkley, the boys’ father.
The family is dedicated to finding a cure. This week they are going to Washington DC with JDRF, a group that raises money for research. There they will go face to face with lawmakers...
“It gives congress a chance to see faces behind the statistics, that there are cute kids that will grow into adults and still have this disease,” says Amy Merkley.
JDRF Executive Director, Laura Western hopes those faces will persuade congress to support the Special Diabetes Funding Program. She says funding is key to a cure.
“We need that revenue in place to help us move the research forward from the bench side to the bed side if you will.”
Will and Jake Merkley and Alex Romero were selected to represent the state of Utah before congress based on essays the three wrote about living with diabetes. They leave Monday for the big trip.